nhs – Dave Briggs

📅 Daily Note: September 18, 2025

September 18, 2025

What I’m suggesting is a new approach for the times when there’s a perceived need for a document called a “strategy”. It shouldn’t be a document full of “we will”; it should be a website full of “what we’re learning”.

Use it to demonstrate your institutional capability to test and learn, to enquire and be curious.

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Key learnings from GOV.UK One Login discovery research for local government:

Key themes emerging from the research include:

cost savings are essential – councils told us this would be critical to secure leadership buy-in

identity verification is a USP – councils value secure verification and the potential to share credentials across local and central government

suppliers are open to integration – many are already using, or moving towards, OpenID Connect (OIDC) compatibility

forward thinking but stretched – councils want to future-proof systems, but limited resources, capability, and competing priorities are barriers

user adoption risks – concerns about digital exclusion, resident trust, and the transitioning of users to a new system

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Dave Winer, It’s really simple:

FeedLand is the perfect back-end for a twitter-like system, for the feeds part. And for the words, the perfect back-end is WordPress. I only discovered that about 1.5 years ago. And I had to see what it looks like. No more tiny little text boxes, it’s a real editor that supports all the features of the web. How do I know? Because it saves its data in Markdown. That has come to be the defining format for the text-based web. One which has been totally ignored by the twitter-like systems. How could they miss that? Markdown is like MP3. If you’re mixing sound into feeds you use MP3 of course. It’s there for you to use. As was Markdown. If you’re mixing text you’re mixing Markdown.

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Really Simple Licensing – “The open content licensing standard for the AI-first Internet”.

RSL is an open standard that lets publishers define machine-readable licensing terms for their content, including attribution, pay per crawl, and pay per inference compensation.

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Avoiding the hidden costs of leadership debt – Oli Lovell, Public Digital:

Technical debt is well recognised. But the same logic of ever-shifting organisational needs – and therefore the debt accrued by standing still – applies to leadership too. As a leader, your skills, models and culture operate as a system of their own, determining how well your organisation is able to adapt and respond to change.

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Decision making at the right level with Hats, Haircuts and Tattoos by Emily Webber:

What I like about these definitions is that they provide a framework for considering a decision, while also allowing for the differences and nuances of the situation and the experience of the people making them.

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This is a fair challenge:

i know its a lot easier to book the same recurring slot every fortnight / month

but its quite depressing seeing group after group you never get to attend, because they always meet on your non working day 😔

I did the lazy thing with Localise Live! but probably should have mixed it up a bit more. I will be making recordings available to people who sign up, so maybe I need to make it clearer that people should sign up even if they can’t make the meetings, so they get that access…

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David Gerrard – UK government productivity not enhanced by Copilot AI

The main uses were “transcribing or summarising a meeting”, “writing an email”, and “summarising written communications”.

The bot didn’t do so well on anything more complicated. Users could churn out PowerPoint slides faster, but worse. Excel data analysis was slower, and worse.

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How Tim Cook sold out Steve Jobs by Anil Dash:

There’s a tech industry habit of second-guessing “what would Steve Jobs have done” ever since he passed away, and most of the things people attribute to him seem like guesses about a guy who was very hard to predict and often inconsistent. But recently, we have one of those very rare cases where we know exactly what Steve Jobs would not have done. Tim Cook and Apple’s leadership team have sold out the very American opportunity that made Steve Jobs’ life and accomplishments possible, while betraying his famously contemptuous attitude towards bullshit institutions.

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James Plunkett writes What does digital-era healthcare really mean?

When the UK government published its 10 Year Plan for Health two months ago, there was general support for its direction of travel: shifting from analogue to digital, from hospitals to communities, and from treatment to prevention.

The question people asked is whether the healthcare system has the capability to deliver these shifts. Or, put more bluntly, ‘we’ve heard this all before, so why is this time different?’

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Link roundup

January 24, 2014

I find this stuff so you don’t have to:

Bookmarks for July 28th through August 5th

August 5, 2010

I find this stuff so that you don’t have to.

NHS spends millions on websites that fail patients, says government report | Society | The Guardian – "The NHS spends up to £86m a year on thousands of websites that are difficult to find, badly designed and irrelevant to patient needs, according to a leaked government report."
Open data on the cheap at Helpful Technology – "…without the cost and complexity of building and mantaining a full API to their database, a corporate public sector organisation has been able to support reuse in a quick and simple way."
Retooled — Retooled is a place to find and share experiences of the rollercoaster of redundancy. – "This site was begun by a group of employees who were all made redundant when our company MG Rover closed. We hope by sharing our experiences, Retooled will be valuable to anyone who is going through redundancy."
Straight Statistics – "We are a campaign established by journalists and statisticians to improve the understanding and use of statistics by government, politicians, companies, advertisers and the mass media."
Data.gov.uk chief admits transparency concerns – "Cabinet Office official Richard Stirling, who leads the team that runs Data.gov.uk, said that if he was at the Office for National Statistics he would have concerns about statistical releases and people making assumptions "that aren't quite valid"."
i-volunteer.org.uk – "i-volunteer is a social network that connects volunteers, charities and volunteer managers across the UK."
Does Outsourcing Destroy IT Innovation? – "…those that outsource IT on a wholesale basis "struggle to use IT to drive value and have limited strategic flexibility as the business context evolves and hardware prices plummet.""
The community right to build – do we know if it will work? – "We think that when these reforms come out in the wash at the local level, it will often be the role, and the responsibility, of local (parish and town) councils and their committed volunteer councillors to make planning work positively for local places."
All systems (about to) go – "[the knowledge hub] will be a place to discover a wide range of materials and content to support the development and improvement of local public services."
Council stages CovJam to help shape Coventry’s future – "In what has the potential to become a blueprint for cities around the globe, the council staged the world's first city-wide online conversation with nearly 900 local residents, businesses and public bodies."

You can find all my bookmarks on Delicious. There is also even more stuff on my shared Google Reader page.

You can also see all the videos I think are worth watching at my video scrapbook.

Bookmarks for March 18th through March 20th

March 20, 2010

[Something is going wrong with this again. For some reason this hadn’t been posted before now.]

I find this stuff so that you don’t have to.

Embracing Government 2.0: Leading transformative change in the public sector (PDF) – PDF warning! Link to paper from Grant Thornton on gov 2.0 – some interesting case studies.
Government webpage for every citizen in the race to create a paperless society – Times Online – “All public services could be delivered online within four years under an ambitious pledge by Gordon Brown to create a paperless state and save billions of pounds”
What is eSpace? | NHS CFH eSpace – “eSpace is a community based online collaboration tool dedicated to improving healthcare and wellness by sharing knowledge and experiences of technology enabled change.” via @dominiccampbell
What Is Open Government For? – “It is quite clear that, depending on what is the primary driver to be “open”, the meaning of openness changes, as do the effort put on different aspects of an open government strategy and plan.”
Central government reorganisation squandering millions on IT – “More than £150m was spent on IT by government departments going through a process of restructuring but there is little evidence of any benefits, finds a new NAO report.”
Fake Experts – “It is possible that the most frustrating thing ever is to have to sit through meetings with people who have declared that they’re experts, and then discover that they aren’t.”
The problem of incentives in knowledge work – “I’m struggling with the issue of incentives in organizations trying to promote improved knowledge management and more effective use of new collaboration tools such as blogs, wikis, and the like.”
Multimedia Wikipedia: Can Video Be Collaborative? – Interesting – never mind the tech, how does video fit with the ethos of Wikipedia?
The Problem with Big Data – “He who has the most data wins. Right?”

You can find all my bookmarks on Delicious. There is also even more stuff on my shared Google Reader page.

You can also see all the videos I think are worth watching at my video scrapbook.

Patients Know Best

January 7, 2009

Dr Mohammed Al-Ubaydli from Patients Know Best came to talk to the Cambridge Refresh group this evening. Patients Know Best is a startup which aims to help patients make use of their ‘Personal Health Record’ – a copy of which can be requested by anyone from their doctor under data protection laws.

The idea is that the management of a patient’s health should be a partnership between the patient and their doctor, and that anything the patient can do to help their doctor must be a good thing. People should take some kind of responsibility for their own illnesses.

One example Mohammed gave of this working is where a patient may spot something in their own record that their doctor has missed – after all, doctors are jolly busy people, and mistakes and oversights do happen. The patient isn’t doing the doctor’s job for them, just providing a second pair of eyes.

It turns out that there is a huge amount going on in both the UK and the US with patients using their access to their records to research their conditions and provide support to each other through social networks and other means. One of the jobs Patients Know Best is doing is collecting all this stuff together, onto a wiki. This is not only useful stuff to be doing, but also good marketing, of course. Patients Know Best could become synonymous with this kind of social use of medical records.

Patients Know Best are developing a software package to enable patients and doctors to communicate better through the web. My understanding is that it will allow patients to access their records electronically and then discuss the details with their doctor, without needing to make an appointment, thus saving everyone time. Mohammed is looking for people: to act as beta testers and to offer their services to the startup – principally Java-savvy developers at this stage.

You can see Mohammed’s slides on Google Docs.

Below are the notes I made during the talk – there may well be inaccuracies and falsehoods amongst the typos – if you spot any do let me know in the comments. I’ve tried to add as many links in as I can to help make the notes as comprehensible as possible…

Communication is crucial in chronic diseases
Patient has time to learn about your condition
Patient has less than 1 hour with specialist per year
Lots of different people work together with patients
Patient knows more than anyone about their personal circumstances
Why don’t more people use the web to communicate about their condition? 1. Security risks around digital data; 2. Issues around consent and data protection act; 3. What if the right person doesn’t get access to the information they need (eg doctors seeing patient records); 4. Not knowing that you can communicate, or how you can communicate
3 key questions for your clinician: 1. What are we doing; 2. Why are we doing it; 3. What happens if we don’t do it?
Get a copy of your personal health record – you can’t know what is going on without it
Patientslikeme.com – takes the view that you are safer the more people know about your situation – also rareshare.org (treat such open sites with a little caution)
Patients’ access to PHRs is a Lutheran revolution – everyone should have access and understanding
Having understanding of your notes make medicine participatory not paternalistic
You can check your records and possibly spot something that busy doctors might miss (is this treating a symptom rather than the actual disease in the system?!?)
More private tools: MyFamilyHealth, healthecard, PAERS, t+medical, healthspace
Rareshare – social network for people with rare diseases. Sharing of experience and stories. Clinicians also use it to learn (US based)
Patientslikeme – connect with similarly ill people and share knowledge, experience etc. Learning from peers rather than those in ‘authority’ (US based?)
Harold Shipman – got away with it by faking records, not possible if publicly available. Elimination of distrust
PAERS – access records through web interface
Healthecard – carry your records around on a USB card, very private (UK)
Healthspace – you put your own info on it. Good system but isolated from NHS records.
Think positive (vodafone backed?) Records home monitor data (couldn’t find a link within 2 minutes so got bored)
MyFamilyHealth (Cambridge based) Plot family tree with illness history. GenSeq backed – they use DNA samples to provides details of health risks etc also. Provides tailored health information – which drugs would work best for you, etc?
3G doctor – phone based. Video phone consultation for £35 after you have given them details of your problem/history etc. Phone back after 24 hours so have time to consider. (I find this worrying)
Lots of information about all these services at podcast.patientsknowbest.com also on the wiki
PatientsKnowBest is developing software to provide communications link between patient and doctor to help explain the patient record and what it means
How are ‘official’ NHS initiatives liaising with this stuff?
Obama to put medical records online?
Currently 3 electronic medical records system providers in UK, not many of which work properly
UK Gov has set data standards – should all match – HL7
Role of Google Health, Microsoft Health Vault etc – use CCR data standard (better?) – also US based so data protection issues with EU etc
What about digital divide – those with access, time and money to do this stuff. Are people without the skills etc really going to get involved, will they be left behind? 2 tier health service?
Involvement of support groups, third sector, community groups etc
Issue of insurers and employers accessing details of medical history – possibly a concern
Mohammed is looking for beta testers and people interested in helping out with the project – UK & then US focused to begin with
Tolven Java based is the software for the medical record software
Starting with genetic immune deficiencies, then diabetes, asthma etc